Who we are

Mustard Seed Communities (MSC) is a catholic, charitable organization that has served abandoned disabled children and pregnant teenage girls for over 25 years. Dare to Care is the HIV/AIDS program of Mustard Seed Communities that was established out of the great need to provide care to abandoned or orphaned HIV/AIDS infected children in Jamaica.

Approximately four years ago the Executive Director, Fr. Gregory Ramkissoon was asked by the Ambassador for Children, Ms. Marjorie Taylor, to provide care for twenty orphaned and abandoned children living with HIV/AIDS, as no facility existed in the country that catered to the needs of children living with HIV/AIDS. Minister of Health, the Honorable John Junor, officially opened the doors of Dare to Care to seven HIV positive children on September 14, 2000.

Dare to Care's first Home was established in St Catherine for 20 children. Filled to capacity after two years, another Home called Matthew 25:40 was set up in Kingston to house 15 children. Since then Dare to Care has expanded its facility in St. Catherine to accommodate another 10 children. Plans are under way to construct new facilities in Kingston and Montego Bay.

Since its inception, Dare to Care has provided care to 54 children, 9 of whom have died from AIDS. At present 45 children are housed in two different locations. Dare to Care (St Catherine), has 30 children whose ages range from 1 to 16 years. Matthew 25:40 accommodates 15 children ranging in ages from 1 to 13 years.

The Home strives to provide worthwhile and sufficient care for the children by consistently learning more about HIV/AIDS. In order to gain further knowledge, Dare to Care works as closely as possible with the relevant state bodies such as the Ministry of Health, National AIDS Committee and the Child Development Agency.

The children come from all over the island, abandoned by parents or orphaned as a result of HIV/AIDS. All of the children are wards of the state and are transferred from other children's homes or places of safety.

There are 12 caregivers (including a cook and cleaner/laundress) working with the children in St Catherine, and 8 caregivers catering to the needs of the children in Kingston. The children, so as to create a family-like environment, call all of the caregivers AUNTIE and UNCLE.

In the early stages of the program, the focus of the Home was to provide hospice care to children who were at the end stages of the disease. The focus has since shifted to giving these children a real chance at life, which would mean providing for all of their developmental and psychosocial needs as well as prolonging their lives.

Prolonging the lives of these children would need the intervention of medication, nutrition and psychosocial support, all of which are expensive. However, saving lives was put at the forefront and it was against this background, a drive was undertaken by Dare to Care to raise funds for medication. Additionally, Pharmaceutical companies both locally and overseas were approached with the aim of soliciting antiretroviral drugs for the children. This proved to be very challenging as many of the drug companies were not willing to donate these expensive drugs.

Services
  • Medical
  • Education
  • Spirituality
  • Psychosocial
  • Social Activities

    Successes Achieved
  • Children with HIV/AIDS are living longer and a better quality of life Access to Treatment
  • Removing some of the stigma of HIV/AIDS & building greater sensitivity

    Medical
    The government does not subsidize anti-retroviral drugs (HIV/AIDS medication) and so Dare to Care has to bear the full cost of these very expensive drugs. It is estimated that the cost of providing anti-retroviral therapy for each child per month is J$10,000. Based on this estimate it would cost the home approximately J$5.4 million per year for the supply of anti-retroviral drugs for all forty-five children. In addition to the supply of anti-retroviral therapy, the medical condition of the children has to be monitored once they are placed on these drugs. It is required that a CD4/CD8 test (gives an idea of the status of the immune system) be done twice yearly, costing J$6000 per child. This is an alternative or an addition to the viral load test (test the level of the virus in the body) that costs US$252 plus J$2000 per child. To date, the home has not been able to do any viral load testing because of the tremendous cost involved. However, they have been fortunate to get sponsorship from generous individuals for CD4/CD8 testing and so they have a fairly good idea of the medical condition of the children.

    Education
    Most of our children attend the Little Angels Learning Center, a school system operated by MSC and registered by the Ministry of Education. Three of the older children go to school in the surrounding communities. It is the Home's aim to send all of the children outside to school, to allow them the experience of being educated in the regular school system. However, this has somewhat presented a challenge for Dare to Care, as some school administrators are not willing to place HIV positive children in their schools as they believe that other parents would object to this and even in some cases pull their children from these schools.

    Spirituality
    A lot of emphasis is placed on the children's Spirituality, as Christ remains their main source of existence. The children are baptized Catholics and participate in daily spiritual activities as well as attending weekly church services. The spiritual activities include spending 20 minutes in the adoration chapel each day, saying the rosary as well as having morning and evening devotion. The staff members are also encouraged to take part in all of these spiritual activities.

    Psychosocial
    Most of our children are becoming aware of their HIV positive status as well as they are now acting out experiences in the past. Counseling sessions, other therapeutic activities are encouraged in the homes. Psychosocial support has proven to be the Home's biggest challenge, as psychological care for children in Jamaica is very expensive as well as limited. They are currently looking into the possibility of getting a full time counsellor for both homes as well as they are discussing the possibility of setting up a mentoring program for the children, where responsible and mature citizens play the role of big brothers or sisters, sponsor moms or dads with the hope that they would impact the lives of the children in a meaningful way.

    Social Activities
    Theatrical productions, movies, concert events, parks, and trips to the zoo are some of the ways the children enjoy life outside the home. Visitors and volunteers frequently spend time treating the children as well as just sharing with them. These visits and treats are encouraged so as to enrich the lives of the children, offering them experiences of kindness and love. This has also lifted the morale of the staff, as they are encouraged by the efforts of generous individuals to work with them to provide the best possible care for their children.

    Successes Achieved

    Children with HIV/AIDS are living longer and a better quality of life.
    Dare to Care's biggest success is that of saving or prolonging the lives of children, who were before given a death sentence because they are HIV positive. Most of the children when placed at Dare to Care are usually at a stage of dying or in very bad condition. With the intervention of medication and love that the home provides, the majority of the children have made a complete turn around. Some 85% of them who are placed at the Home are living longer and relatively healthy and normal lives. The Home has not reported any deaths in the past two years.

    One example of saving the life of a child is the story of our sixteen-year-old resident who came to the home three months pregnant. After being admitted to the home she was immediately placed on the mother to child transmission of HIV program at the University Hospital where she was treated with AIDS medication prior to delivery and where the baby was also treated for six weeks after his birth. Recent tests done revealed that the baby (who is now one year old) is HIV negative.

    With the stigma attached to the disease children living with HIV/AIDS are usually mistreated and isolated from society and so many time they are not given a chance to live a normal life. That is, they are barred from schools if their status is known, they are treated with disdain and disregard by their communities and even by family and most of all they are orphaned by parents who have died from AIDS and/or abandoned by relatives who do not want to have any association with them. These children are usually developmentally delayed and emotionally and mentally scared.

    At Dare to Care the children are treated like normal children, in that they are schooled, which will help with the developmental aspect of their lives as well as they are given a lot of love and attention by staff, volunteers and visitors. This is evidence by how happy and loving the children are. Children who were once withdrawn, sad and had given up on life are now happy and willing to fight to live.

    The two older girls in the Home (ages 14 & 16) who contracted HIV/AIDS through sexual abuse are now in a safer environment where they can develop and grow and be children. They are currently being exposed to skills training as well as academics so as to prepare them for society where as young adults they can gain employment and live valuable lives. These girls are very much aware of their HIV positive status and have accepted it and are better able to deal with it because of the counseling they receive at the home. These girls are developing into strong individuals and are now expressing the desire to bring more awareness to the disease by speaking of their experiences.

    Access to Treatment
    Not too long ago HIV positive people were given a death sentence in that, treatment for the disease was either not available or too expensive. In recent times, more and more AIDS medication is becoming available to those infected at a cheaper rate. Lasco Pharmaceutical initiated the supply of generic drugs at a much cheaper rate than the competing brands; Lasco also donates about 20% of these important drugs to the Home. As a result, thirty-two of the children who were not doing well clinically could be placed on treatment.

    The Home is now receiving free antiretroviral drugs for all of the children on meds from the Global fund (Aid from the USA government for HIV infected persons in the Caribbean). This will allow us to start treating the other children as well as sustaining the treatment for those who are already on the medication.

    Our children have access to free clinical care at the pediatrics HIV/AIDS clinics set up in the local Hospitals. Pediatrics HIV/AIDS specialists, who have taken a keen interest in the medical care of the children, monitor the children. As a result, the children's medical conditions have improved significantly.

    Removing some of the stigma of HIV/AIDS & building greater sensitivity.
    The stigmatization of individuals infected with HIV or AIDS remains a central issue. However, the children at Dare to Care are helping to break down any barriers or walls created against them by society by showing the community that they are loving, caring, relatively healthy and normal children who love to laugh and play.

    Many people have the perception that HIV positive children are 'malnourished-looking' children with lots of sores covering their bodies. This perception is quickly erased when people meet the healthy-looking, bright, loving children at Dare to Care. The home has frequent and repeat visits from individuals from different groups, many of whom are now requesting to take the children out as well as having them spend time with their families in their private homes.

    July 2005
  • Official Opening of Dare to Care
    Official Opening of Dare to Care

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    Dare to Care
    Mission Statement
    Grounded in the firm belief that all persons - the healthy, the sick, and terminally ill - are entitled to live worthy lives, we are committed to the care of abandoned children afflicted with HIV/AIDS, ensuring that they receive all the love and care they need and deserve.